cancer


These next few posts are adapted from diary entries during the final days/hours of Steven’s life. It was a second marriage for both of us, and far too short. I’m playing catch up now and wanted to share some of the moments I’ve written about recently.

Framing Steve

Steve’s visions 

As I write this, on 5/25/25, I remember something you told me about when two of your children visited a few days earlier. You had described to them that there was a large owl standing on the chair on the deck just outside the French doors of the bedroom. I looked and there was a brown patterned pillow on the chair, but that was all. I wondered if you were mistaking the pillow for an owl. And remembered also that there was an owl decoy on the retaining wall that could be seen out another window but that’s not where you were looking. But I was reminded that in some cultures the sight of an owl was a sign of impending death. In some Native cultures, owls could even be messengers from the afterlife.

It was you who told me about your other vision. You told me you saw a vision of God. He was standing at the foot of his bed. I slowly prodded you for answers to a few questions.

What did he look like? You responded, God looked like he was in his mid-30s. He had dark shoulder-length hair. And most notably, he was wearing a white suit. You also added that he was wearing glasses.

So I asked, could you see his eyes? Were they nice eyes? You responded that they were kind eyes. Speaking with my voice low, I responded to you that, should God reach his hand out to you that it would be okay if you took his hand to go with him. 

May 25, 2025

My dearest Steve, I know you’d love the symmetry of the date as a point to mark your passing, your transition to the space of love, light, and free of the bonds of the physical body that has tortured you these last couple of years.

The terminal restless that has plagued us both these last couple of days has been replaced by the torturous gurgles of your breaths, still coming strong and regular, though with a gulping lurch consistent with the 83% blood oxygen levels I measured just moments ago. 

Your heart races at 136 beats per minute as that muscle does its darnedest to keep itself going. But, like a runner who keeps going despite their legs collapsing beneath them, you, too, will face the end of your physical capacity. Simply put, it will wear itself out, and quickly.

Steven, yours is a magnificent soul. An old soul craftsman who has lived a life of joyful creation with the youthful exuberance of the 12-yr-old you oft-claimed to be. I wonder how life for you would have been if you’d been able to live with that joyful abandon before I met you.

Father Joe came to visit Thursday morning at my invitation. I knew your daughter would appreciate it and I was so glad you were able to meet him. We’d laughed often at his FB posts about parking in the parrish parking lot. He always wrote with a disarming humor that made it hard to argue with. So I was actually excited and honored that he’d accepted this Jewish girl’s request to have him visit my (lapsed) Catholic husband. Your daughter was even able to get here just in time to join in the prayers. As he left he offered to come back, though I wasn’t sure how I’d reach him over the holiday weekend. 

We had a visit yesterday, Saturday, by your ex-wife, along with both your daughters. I have no ill will when it comes to your ex. After all, she let you go so you would find me, and for that I am grateful.

They arrived just as you and I were in a struggle, having wrestled a bit for more than 20 minutes as you insisted on getting out of bed. Your mind was disoriented, oxygen-deprived, and could no longer understand the words I spoke, pleading to you to stay in bed, that the catheter would now limit your movements. 

But you looked at me with wild eyes, and a physical strength I would have found impressive at your late stage of dying, that is, if I weren’t trying to keep you from knocking me over, as well.

We stood in a strange embrace, you with the look of a caged animal desperate to leave the chains of your body, and me with tears welling up as I tried to find ways to reason with you on our next dance steps. 

Part of me actually was taken back to our first dates together, a dance class you said you’d take with me. It was part of your pickup line. “I wish I could dance with you,” that you wrote when I had shared that I’d started a dance class after Keith had died. I had needed to move, to feel part of the music, to feed my aching soul. 

And you willingly put yourself out there, to try and dance with me, sheepishly and a bit out of rhythm and step. But you gave it your best try. You did it for me, to help heal my aching heart while also getting closer to me. It worked.

Now 12 years later, we are standing here in an embrace, your body degrading against your will, your mind disintegrating from the lack of oxygen. And all I want to do is take away your pain. 

A moment of understanding happened when I asked you “Steve, do you want your ex and your daughters to see you like this?” No, you shook your head. So I managed to get you to sit and then lie down on the bed. The next struggle would be to get you to a better position since you had ended up too close to the foot of the bed.

I called out for Steve’s oldest daughter who I knew was now in the house with her sister and mom. I called again, but no answer. Finally I went to the bedroom door and opened it to find his younger daughter standing in the kitchen. Her sister had been in the bathroom down the hall. “I need physical help,” I told her urgently. Soon both the girls were in the bedroom struggling to get Steve further up the bed, lifting his arm from each side. 

As I stepped back to let them work, I turned around to see his first wife standing beside me. I did what I’d done the last time we’d met, almost exactly 11 years before. I held out my hand to shake hers and said “Hi. I’m so sorry that we keep having to meet around death and dying.” I was referring to the first time we’d met at Steve’s mother’s funeral. Thankfully, she was gracious and responded warmly to thank me for allowing her to come to see him. It had been an interesting turn since I had invited her a week or so earlier and she had politely declined. But apparently her daughter had been able to convince her it was important to them.

Scarecrow Steve

The rest of that day, Saturday, was a bit of a blur. The on-call nurse finally arrived again after taking care of another patient who’d fallen. It was Memorial Day weekend and she was the one on call for the weekend. And she’d already been here until 3 am that same day to insert the aforementioned catheter. 

Before the nurse had left from that middle-of-the-night visit, and after she’d admonished me to get some rest myself, I confided that I’d need it because Steve’s ex and daughters would be arriving in the morning. “Oh, I want to HEAR about that, girl!” We laughed. So when she’d arrived for the second time, with all of them present, I was very pointed in introducing everyone before she got too far. She met my eyes with a knowing look (so THIS is the ex!) after I’d introduced them all.

Later, after I’d taken the short nap that my favorite nurse had urged while admonishing the girls that they needed to do their part, I suggested to their mom that she might like a tour of the place and a short walk outside. I needed it myself. The sun was shining, though the air was still a cool 52 degrees, rather chilly for this time of year. As we walked around, I shared stories of the property and what we’d done to it. And more than once, and then again in the workshops, she remarked that Steve had found his heaven on earth with everything… the tools, the shop, the playful space for creating. She seemed to understand more about why Steve had found me.

They’d left around 3 pm Saturday to head home, saying their goodbyes to you, Steve, knowing that would likely be the last time they’d see you alive. And your youngest son arrived around dinner time and we began to trade shifts through the longest night.

The Last Hours

It’s 9:50 am on Sunday now and I’ve been writing and listening to music, your favorite tunes, as I try and capture my thoughts during these last hours.

Your breathing has gotten “jerkier”, for lack of a better description. The gurgling is a bit louder, deeper in the chest. I checked your O2 and it briefly showed 60% with only 40 bpm. But when I checked the left hand, and then again your right, I could get no reading at all. The line that indicated your pulse rate would only occasionally show a blip. For a moment I was fascinated by this data-informed visualization of your impending departure from this earthly plain. 

But then my own heart began to ache. Your phone had been dinging, messages from a close friend. She was desperate to hear from you, to get comfort for a difficult diagnosis she was facing. But I’m concentrating on you, my dear love. Do I bother with the last dose of morphine? You’re not in pain. So maybe it’s best to leave that alone. You’re done being the subject of medicine.

It’s time to release your soul to the other side… a place of peace and love. Part of me envies you that you will find peace while the rest of us deal with the pain of missing you.

Go with love, my sweetheart. Go with love and peace.

I play the Beatles for you. I’d bought tickets to Rain, a Beatles-tribute band, and you absolutely loved every minute of it. Finding our shared joy in music was another thing that brought us closer.

It’s 10:19 am. The Beatles music ended with “Shake it up Baby”. And so did you, and so will I.

Love you, my sweetheart. Go in love and peace.

Steve with grandson helper.

Preparing for the Public Goodbyes

It’s 1 am on 5/31/25, nearly a week after you left this earthly plane. I’ve been keeping busy… making your final arrangements, researching and ordering up the hourglass urns, navigating the conflicts arising from my inability to please everyone all the time.

A couple of hours ago, I glanced at the clock and it read 11:11 pm. The angel number that may mean you’re trying to send me a message, that everything is anew… for you in the afterlife… and for me here in among the living.

The associative memories are powerful, yet remade in a new context. I sat in my leather chair in the middle of the living room, Steve lay sleeping on the couch with his back to me, the hum of the oxygen generator filling the space between us. Sunlight shines outside and the room feels light as air, yet my heart feels the aching weight of loss. 

So this is how it’s going to be, I’m thinking. This is how it will feel when I’m living alone, the last one standing in this giant house.

I look down at the laptop where I’m catching up on emails and making final tweaks on the syllabus for a summer course. It’s busy work, the kind that distracts me from that sinking feeling that comes with grief of anticipated loss.

But when I look up again at the dark blue sofa, it appears empty and I hear only silence. 

So this is how it’s going to be, I’m thinking. This is how it will feel when I’m living alone, the last one standing in this giant house.

I remember sitting in this chair in the living room at Jerome Lane, attempting to do my doctoral studies at a rolling desk while Keith lay on the couch in pain. But I couldn’t do the work. I quit for that summer of 2012, unable to mentally process a null hypothesis in the quantitative research methods course that began just as Keith was being diagnosed. I later finished that doctorate – with Steve’s emotional support. He made it possible to push forward, to concentrate on all the things, including making sense of the workshops and property on Perry Road. 

Together we would make a life – for me after Keith. And for Steve it was after his divorce. Together we could heal each other’s pain.

But now, in the living room of this new home we built together on this special property on Perry Road… after losing Keith beforehand, then my mother before it was finished, and my dad at the start of Covid, all of them gone… I try to prepare myself for losing Steven.

He’s still here, yet consciousness is an evasive state of being. 

I sit here in my leather chair, my laptop open, but I’ve given up on getting any real work done, and scroll through social media instead.

Same chair, different space.

Flowers that dear Steve asked his son to arrange to send to me on Mother’s Day this year. My birthday was just a little over a week before but life was too hectic with the end-of-semester rush and Steve’s 24-7 care to coordinate. Yet during one of those quieter times, out of my earshot, Steve had the presence of mind to ask his son for this favor. Love finds a way.

Sarah said I have a type. And then I as we hugged in pain from the news, Steve said the same thing, “you have a type.”

I guess by that they meant that I loved sharing my life with a partner who also shared my curiousity, creative sense of play and exploration, and whose work complemented my own as we supported each other’s pursuits. The implication, however, was that they often worked with materials that were toxic, or shared the habits of their generation such as heavy smoking and drinking, suffering the consequences of the indiscretions of youthful hubris.

The sad part is that there are no guarantees on longevity. None of us gets an assurance on how long we have on this earth, on how much time we have to spend with our loved ones. And no amount of love, no matter how deep, will keep them here on this earth if their fate is meant to be somewhere else.

[N]o amount of love, no matter how deep, will keep them here on this earth if their fate is meant to be somewhere else.

Not Again

Steve had been feeling sick since late September and was finally able to get a telehealth doctor’s visit in late October. That lead to an immediate trip to the ER due to pleural effusion and three days in the hospital. More follow-up doctor’s visits and then another visit to the ER and a week in the hospital, collapsed lung, more thoracentesis, CT scans, pathologies, and finally a confirmed diagnosis – stage IV non-small cell lung cancer adenocarcinoma. Followed by biopsies, colonoscopy/endoscopy, and PET-CT and finally a meeting with the oncologist.

Treatment would be palliative to keep the cancer from spreading further. Depending on the analysis of tissue from the biopsy, it would include immunotherapy, or a combination of immunotherapy and chemotherapy. Prognosis was dependent on the outcome of that treatment – months or years.

In dark times like this, sometimes a morbid sense of humor results. “I thought I had a 10-year warranty on our marriage!” I said to Steven as we shared a quiet celebration of our 8th anniversary this week. “And I intended to renew it with another 10-year extended warranty!” Geez.

Preparing for the holidays

This past weekend Steve was able to fit in some moments of normalcy between naps and directing from his stressless recliner as visiting family members helped with chores that culminated in decorating a much smaller Christmas tree that I’d ordered. At half the size of the 12′ tree we’ve had the past few years, the smaller 6-1/2 footer allowed me to manage its assembly and grandkids to help with decorations without a ladder. The job was done in a matter of hours instead of days. Although not the grand tree we usually had, it put a smile on Steve’s face and that’s what mattered to me most.

The new 6-1/2 ft tree was decorated with help from family including grandchildren. It replaced the 12-1/2 ft tree that normally fills the room but that takes two adults on ladders to do. This smaller tree was put up and decorated in a day and still managed very nicely to make everyone smile with gratitude and appreciation.

And an anniversary

When we first started dating, he’d show up at my door with two roses in his hand and a silly grin on his face. It always made me smile in return and lightened my heart. Steve gives the best hugs and so it has been my goal to return those hugs and their healing power as much as I can and he’s willing to accept them as his body fights back.

Copper orange roses for our 8th anniversary.

So on our 8th anniversary this week, I brought him a dozen copper orange roses, a box of chocolates, and a Hallmark card. These were what he would have brought me but driving hasn’t been his option for the last two months. So I did it for both of us. His lip quivered a bit fighting back tears as he read the card and saw the roses. I split them up – 8 in one vase for the years we’ve been together, and another 4 for blessings going forward.

Dinner and The Voice

We sit here and watch the finale performances for this season’s The Voice. We’re in the new bed I bought, a split adjustable king bed that would allow Steve to raise and lower his back and legs to help him breath and get a bit more comfortable. 

This afternoon, while I was in online meetings and student reviews in my home office, Steve was riding the tractor down the hillside out back with John following so they could hook up the plow blade for the inevitable snowfall we anticipate for the winter, yet haven’t seen much of yet.

I was part horrified when I learned of his joyriding out back while holding back my critique as he looked at me painfully while trying to eat his dinner. He’d been asking me to make this dish he saw on Facebook – baked honey sesame chicken which was basically a sweet and sour chicken – and so I made it. But that pained look told me he was struggling to eat it – not because he didn’t like the taste, but because as soon as he starts to eat, his stomach says “no more.” 

“Did you feel almost normal when you were riding around on the tractor?”
“Yes, almost.”
“Then it was worth it.”

“How have you been feeling?” I asked. “Crappy all over,” he replied. “It’ll be okay,” I replied. But he broke down. He didn’t like this crappy feeling, he said between tears. “Did you feel almost normal when you were riding around on the tractor?” I asked him, touching his arm gently. “Yes, almost,” came the reply between the slowing sobs. “Then it was worth it,” I whispered.

But deep inside, I wondered how many more of these “close to normal” moments there would be in his future. 

Silken Windhounds, Louie (white and tan) and Ralph (dark grey and black) curl up beside Steve as he watches the singers on The Voice between short naps.

As I write this, Steve munches on some Lays Waves potato chips, craved from the power of suggestion as The Voice’s Blake Shelton did a shtick where he steals the Voice award by swapping the award sitting on a pedestal rigged with an alarm with a bag of Pringles. Steve looks happy. And if I didn’t know better, I’d say all was normal as both Ralph and Louie are curled up with their heads against his side. How I long for this moment of normalcy to last.

Warning: This post includes a reference to my own political views. If any criticism of the recently removed occupant of the White House, aka #45, will upset you, please go elsewhere for your reading. That is, unless you are truly interested in learning about the pain this has caused within families and would like to try and heal that rift. Thank you. – MJF

I often wonder how our conversations would have gone if my Dad were here to have seen how the past 10 months have panned out. We had come to agree not to speak politics, especially at the dinner table. I still remember the day more than four years ago when he asked me why I was screaming when he kept dismissing my concerns about then candidate tRump. I told Dad it was because he terrified me. I could feel the evil he, tRump, was projecting, the cold heartless disregard for others, the narcissistic boasting of lies that his speech pattern revealed, unable to string together a coherent thought while weaving in complete and utter nonsense soaked up by his base who somehow thought being tough meant beating up the opposition. All critical thinking having been abdicated in exchange for a toxic masculinity in what became the cult of the schoolyard bully of tRump.

Mom and Dad in happier healthier times. Summer 2010 visiting the Detroit Zoo as part of a family celebration of their 50th Anniversary.

I remember tearfully and loudly exclaiming how could Dad even consider following him after the toxic expressions of anti-semitism, the admiration of dictators and despots, the complete disregard for human decency and process. My dad dismissively waived off my concerns saying it was just his candidate being boastful, that it would never get that bad. And maybe, I hoped do, too. That the checks and balances of government, and that the fourth estate would be enough. But then came COVID19. And he became so adept at the flippant lies that the cultish base he dog-whistled to had finally been fully brainwashed. And the evil we saw spread in its rabid attack on democracy had reached its peak.

Dad passed away May 1st, 2020 after a brief and ugly battle with cancer, and full of the awful indignities that go with it. And I did my daughterly duties and cared for him, cleaning him up, feeding and bathing him when his body turned against him. As his body began to degrade around him, I remember Dad asking me “What happens after you die?” And it crushed me. Raised Jewish, there is no hell or purgatory. But there is guilt. I chose not to add to his pain. Instead, I asked him questions that were meant to help him reflect and guide him to his own conclusions. He was in a room filled with books that explored this very thing…my mother, who had passed away nearly four years earlier, was a voracious reader of all things spiritual. Yet he had never picked up a single one of these books except to place them on the shelf. So, after a few bits of back and forth that didn’t seem to satisfy him, I simply responded “You’ll be with mom once again.”

The writer of the article linked below is hoping to find his lost (to the cult of tRump) parents long before they die. I hope he is successful.

https://qr.ae/pNlwHD


When a terrible disease ravages someone you love, the mourning process begins long before they finally pass on. Kübler-Ross (1969), in her study on death and dying, described five stages of grief including denial, anger, bargaining, depression, and acceptance. But Kübler-Ross was initially focusing on those who were dying, and not so much on those who were dealing with personal loss of any great significance, which she later came to recognize.

These stages are not linear, either, and can occur in any order, if at all. Women tend to experience all five stages more than men. They can be cyclical, too, with two or more occurring in an almost extreme emotional roller coaster. For both the dying and the loved one, getting to the point of acceptance does not always happen at the same time. The dying often reaches the stage of acceptance before their loved ones. But if and when both reach the point of acceptance, where communication and reflection can be experienced, a more dignified death can be found.

I’d add a couple of additional stages, or at least notable elements, to the stages of pre (and post) grieving. That includes fighting to maintain control of the details in their lives. The opposite is the disruptive feeling of vulnerability when control is lost which can lead to related stages of despair and anger.

Another related stage involves trying to make order in one’s life. Especially when the world around you seems to be in chaos, small efforts to create order can take on an outsized importance. Cleaning out cupboards, putting away old records, sorting through old photos, are just a few example of how the person facing loss may attempt to build a sense of order in a life that seems otherwise out of control.

Recently, I heard this statement made by someone who is facing the inevitable loss of his longtime spouse who is in the late stages of Alzheimer’s disease. I’ve paraphrased it per my own cloudy memory.

I feel like I’m in a carnival outhouse sitting out in a field, and the circus is packing up to leave without me.

While he didn’t elaborate, he was trying to express his feelings regarding the situation he found himself in now. I’ve been thinking about this and cannot help but connect it to my own experiences and ruminations.

First and foremost, there is the overwhelming feeling of vulnerability, of literally having your pants down in a crisis, or a formidable change that is going on around you. You’re stuck. It is hard to move forward without first finishing the primary business at hand. Panic sets in and it is hard to make decisions. Yet you’re also worried about being left behind, and by the act of moving to a new location – mentally, emotionally, and physically – and the unknown that comes with that. But even more so, it is a fear of being left behind by the ominously fast progression of a disease that robs you of the one you love, again mentally, emotionally, and physically.

The carnival/circus represents fetes of apparent magic, gravity-defying acts, seemingly impossible, often nonsensical, frightening in their dangerous distortions of human entertainment, and the funhouse mirrors that twist and distort our vision of reality.

The world around you no longer makes sense and you feel vulnerable, scared, afraid of being left behind, fearing for your loved one and a future you cannot envision without them. It literally scares the shit out of you… And yet you know you have to keep moving to survive. Because that’s your role here.

Of course, the circus could also represent your loved one, the person who was the highlight of your life, with which you shared the literal stage of life, it’s bright lights, music, the comedy and drama of a life fully shared. Either way, it all seems so unfair.

Anger rushes forward. Anger at what fate has thrown you, your loved one, the cruelty of the disease. There is no preferred or better way to die of a disease. Cancer kills the body slowly while eating away at the person. Alzheimers eats away the person while leaving the body to deteriorate at a slower rate, until the parts of the brain that operate the body begin to lose their synaptic connections.

Either way, these diseases are cruel – to the loved one who suffers them, and to the lover who must endure the pain of watching, of frustrating efforts to try and overcome the diseases’ manifestations, the cruel teases of normalcy and strength that suddenly appear and then, as a wisp in the winds, they disappear to the mists that hid the light in their eyes.

Whether you want to or not, you are, and will be… the survivor. The one who will carry the stories forward until they can be shared fully with a new generation. You will be needed by others who will benefit from your wisdom, humor, insights borne of long experience. The fates have determined that your place is here…in this world…where you are still needed.

The journey along side the dying of a loved one is dark and painful. But it also has its moments to be cherished. The fleeting glimpse of a smile, a flash of humor, the small gestures that show you are still connected to this loved one. You have been chosen for the honor of being beside them on this journey to the end of this life. You, however, will stay behind, their partner only until the gates of passage open to the other side. Until death do you part.

It sucks. It hurts so badly, the pain is physical, palpable. Breath… breath… You are still alive. And they will always be with you, and waiting on the other side to greet you when your turn comes, naturally, when the fates determine it to be so. In the meantime, treasure each moment with your loved one as a gift. Soon enough, there will be only memories that you will hold onto tightly, then share with others when the right time comes.

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