The associative memories are powerful, yet remade in a new context. I sat in my leather chair in the middle of the living room, Steve lay sleeping on the couch with his back to me, the hum of the oxygen generator filling the space between us. Sunlight shines outside and the room feels light as air, yet my heart feels the aching weight of loss. 

So this is how it’s going to be, I’m thinking. This is how it will feel when I’m living alone, the last one standing in this giant house.

I look down at the laptop where I’m catching up on emails and making final tweaks on the syllabus for a summer course. It’s busy work, the kind that distracts me from that sinking feeling that comes with grief of anticipated loss.

But when I look up again at the dark blue sofa, it appears empty and I hear only silence. 

So this is how it’s going to be, I’m thinking. This is how it will feel when I’m living alone, the last one standing in this giant house.

I remember sitting in this chair in the living room at Jerome Lane, attempting to do my doctoral studies at a rolling desk while Keith lay on the couch in pain. But I couldn’t do the work. I quit for that summer of 2012, unable to mentally process a null hypothesis in the quantitative research methods course that began just as Keith was being diagnosed. I later finished that doctorate – with Steve’s emotional support. He made it possible to push forward, to concentrate on all the things, including making sense of the workshops and property on Perry Road. 

Together we would make a life – for me after Keith. And for Steve it was after his divorce. Together we could heal each other’s pain.

But now, in the living room of this new home we built together on this special property on Perry Road… after losing Keith beforehand, then my mother before it was finished, and my dad at the start of Covid, all of them gone… I try to prepare myself for losing Steven.

He’s still here, yet consciousness is an evasive state of being. 

I sit here in my leather chair, my laptop open, but I’ve given up on getting any real work done, and scroll through social media instead.

Same chair, different space.

Flowers that dear Steve asked his son to arrange to send to me on Mother’s Day this year. My birthday was just a little over a week before but life was too hectic with the end-of-semester rush and Steve’s 24-7 care to coordinate. Yet during one of those quieter times, out of my earshot, Steve had the presence of mind to ask his son for this favor. Love finds a way.

It’s been nine months since the last entry. Not that I haven’t had anything to say, far from it. But life has been very full… And frankly, I wasn’t sure how much I wanted to really share with the blog-reading public. So I will simply say that life has been mostly good, with many, many blessings to be grateful for, lessons learned, and dreams experienced.

First… The promises kept.

During the summer 2012 of my husband’s illness, when I dropped my classes for the doctoral program I was in, Keith made me promise him two things. First – that I would finish the doctorate, and second – that I wouldn’t sell the property at Perry Rd and would continue with the renovations to make it the studios and gallery we dreamed of, including a photo studio for older daughter Sarah, and a printmaking studio space for Anastassia.

Last month, on May 9, I participated in the commencement and hooding ceremony for my doctorate with highest honors (4.0 GPA) and was given the faculty’s Distinguished Scholar Practitioner Award. I still have some work left on the dissertation. So I am reluctant to duly embrace this achievement. But finish it I will, with an anticipated completion only months away.

20140605-235004-85804919.jpg
Above: Me with my award.
Below: My daughters, me, and Steve pose together with our Spider-Man masks on. One can’t take oneself too seriously, you know.


20140605-235006-85806073.jpg

And last fall, we launched the opening of the photography studio of S.E. Fulmer Photography, followed shortly by the opening of the downstairs gallery. All together, the building is called The Gallery House.

20140605-235720-86240303.jpg
Above: The Gallery House from last Fall.

This summer, with the incredibly dedicated help of my dear companion of the last 14 months, we are heading fully into the workshop renovations. We are starting with some much needed landscaping – fully fencing the space of about 1.25 acres. Then we’ll add some retaining walls, and finally, the building itself will get a thorough clean up. The workshop must be made ready for use in making the project that follows possible.

20140606-001127-687894.jpg

Above: Looking uphill at the workshop which will be the focus of this summer’s renovations at Perry Rd.

New promises…

In late April, I read a book that I recommend to anyone wondering what kind of grief is normal. With apologies to Elizabeth Kubler-Ross, the five stages of grief are more appropriately applied to those who are dying, not necessarily to the survivors. The book is called “Four Funerals and a Wedding” by Jill Smolowe. She experienced the loss of four dear loved ones, including her husband, within a short period of time. She addresses her own manner of dealing with those who offer help, with the potential concern for being judged, and most importantly, the resilience of recovery from loss. In no way does resiliency mean that one has stopped grieving for their loss. But resiliency means one is able to look forward and build a new life, in spite of their loss.

I was so moved by her book, about her ability to describe many of my own feelings and providing the permission one needs to move on, that I sent her an email message. We exchanged some very kind messages and I felt a kinship to the form of widowhood she has defined, where one is allowed to move onward, even find new relationships. She sent her encouraging best wishes, for both the relationship I now have, and for the completion of my degree. If you, too, are facing the potential loss of a loved one, or already have, this book may be for you. If you know someone who is facing this, and you want some insight into how to help, this book would be for you, too.

Another book I read was “Can’t we talk about something more pleasant?” by Roz Chast. A comic book artist, she writes and draws from the heart about her experience as the only child of two 90-something parents who she must deal with in their last few years. Her strong-willed mother faces serious health issues after a falling incident, while her father suffers from dementia. The reality, however, is that we just start falling apart the older we get.

This book also dealt with the feelings of guilt and frustration of the caregiver, Roz, who was an only child. Frustration because she couldn’t convince her parents to move out of their apartment until it was a critical situation, and guilt over issues of money… Would they outlive any money they’d saved? And what of the cost of their care and special living needs? The situation described by Chast was made even more real by the sudden decline in her health of my companion’s aging mother.

These issues have crossed my mind regarding my own parents recently, too, though I have been spared some frustrations. Shortly after my doctoral commencement, a road trip to Florida to see my parents led to discussions about a potential future with them living with me in Michigan. The trip included their first introductions to my companion, and my parents seemed to have really taken a liking to him, and he to them. As my brother (who flew in to help with the discussions) and I looked knowingly at each other, my dad regaled Steven with the stories we’d heard many times before. And my mother seemed to enjoy Steven’s chivalrous nature and good humor.

Though much younger than the situation in Roz Chast’s book, my parents are coming to terms with a future that includes being near me as they face their own health and aging issues. Rather than be a 20-hr drive away, we are now planning to build a multi-generational home to share.
So the workshop at Perry Rd will need to have the woodworking side fully functional.

Yes, a new home is in our future. Recognizing the fact that both my parents are artists, too, my daughter Sarah has already dubbed this future abode: “The House of the Aging Artists” complete with dripping paint for the logo style.

20140606-000725-445962.jpg
Above: a great white heron, one of Keith’s animus, visits me on Sanibel Island during my visit to my parents last month.

Below: Me…on the beach at Sanibel Island.

20140606-000726-446458.jpg

Ah well. I’ve come to the conclusion that we must embrace the life we’re given, go with the flow and be ready for the challenges that life brings. I’ve been through hell and back. Keith is still with me in spirit – I know this for certain. But I’m in this universe and I will be making the most that life offers. It’s the only way I know.